I am so relieved i have got this far, i have had to battle and fight so damn hard to get where i am today for T needs and i can really feel the strain and suffering on my body.
I feel totally worn out, my body aches in all places and my mind seems frazzled! i still have the tribunal to go through just to get him assessed for a statement of SEN and this isnt going to be easy either! i just feel so tired! 5 long yrs just to get a dx and how many more yrs before i get the RIGHT education for his individual needs? who knows! could be 5 more and if thats what it is i will keep on fighting, with all the strength i have left.
Im reading that book by Sandy Row and its amazing how much of what she says is what we are living and have lived! but then WE know the life we live, u have to live it to understand and know it.
I respect all those who wish to learn about ASD and relative disorders (people who are not immediate family) it shows how caring people are to accept our kids and lives for what they are. We live a different life and thats what we have to come to grips with and learn to cope with, thats all i have ever begged professionals for is help to cope with T so we have a life and not just existing. I really felt like i was rotting away and T was mentally losing touch with the world and himself.
He isnt great now by a long shot but im getting repsite and that little help goes a VERY long way, i am grateful for all i can get because i need it and we all need it to cope and keep sane!
I will get to completing writing my book (started it just before T stopped going to school) once T is in an edcautional setting to suit his individual needs and i wont aim for any lower, if i did i would be failing T and i refuse to let these PEOPLE destroy my son's mental health. Why should i accept that?! They wouldnt for their own so i wont, even if i am lower class we are human, we have feelings and we have rights! We know as parents that we would die for our kids, so why people should try beat us down and sweap us under the carpet like WE dont matter is beyond me and so very wrong!
Anyway ive ranted enough now! sorry!!! but i do get angry at how the system treats our disabled community
Thanx misty, i sure will hun
Northern lass born & bred!